Yes, that’s Skylar attempting to stand on his very own without support. He started doing this Friday evening when he was walking his knees around the house. He actually stood in the middle of the kitchen for about a second and I burst into tears. I have to stop myself and realize it’s actually happening. That this is real. I can’t believe it.
Our family has been particularly busy the past week, myself especially with Skylar and my shop. I plan on dedicating the next month completely revamping my entire shop, letting go of a lot of old products and excited to add additional ones. Ian and I have been discussing our future as a family and what it holds for Skylar. Skylar’s first IEP is coming up soon and there’s been a lot of talk about what we’re going to do about therapy, and school. Ian brought up the idea a few nights ago about me home schooling Skylar instead of the traditional path. I was a bit taken off at first and completely against the idea at first, but now with support, advice from his therapists my heart is warming up to the idea. Ian spoke about how not one person on this earth knows Skylar better than myself- who could teach him any better than I? I know he shares my deep fear of Skylar not being accepted into the world, we know how cruel children and other’s can be. And we don’t want that for our son, school doesn’t teach love, acceptance and understanding. More than half the things I learned in school I have forgot, or never needed in my life with Skylar now. If I stayed at home with him I could teach him so many things some educator won’t even dawn upon. I spend hours thinking up ideas and creating different ways I can teach Skylar to do during therapy, my attention will always be focused on him, and only him.
I also brought up the idea to his therapists and Ian about starting a special needs group for children in the area. Every week we could get together at a park, beach, aquarium, or another one of our houses and the children of all different abilities could spend time with each other, play, and make friends. The idea of Skylar being exposed to children like him in a healthy and happy environment just brings a beaming smile on my face. One of my biggest fears is Skylar will grow up not thinking he’s normal. The biggest reason I want to do this is because I want not only Skylar, but every one of these kids to realize they are all so incredibly special beings. I want them to know there is no such thing as normal, they are loved, and that’s all that matters.
That’s what’s been going on in my mind, it’s all just talk now but I would love to make this a reality one day. My Schizencephaly Awareness Project, and this.
Hope you’re all doing well.